Rianne
Ri is on 4 liters on her vapotherm has done well the past two days. She got a blood transfusion last week and her caffeine dose increased which seems to have helped decrease her spells.
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| Doctors have been ultra-aggressive with the new caffeine IV... |
She has been the sleeper of the group this week. There are days where she doesn't show us her eyes much.
She is up to 2 pounds 12 ounces and is being fed 11 ounces every three hours.
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| Ri letting us know what she thinks of the hospital food |
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| Our little wrapped burrito |
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| Mindy and Tony as adults... |
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| Mindy and Tony as kids... |
Teagan
Teagan is at 2 Liters on her vapotherm and doing well. Her spells have been few and far between. She is up on her feedings to 19 ml's every three hours. She weighs two pounds five ounces.
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| I think she knows when we're taking a picture! |
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| So freaking cute.... |
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| That's how little they are, that's a regular pacifier... |
Brielle
Brielle had rough nights on Thursday and Friday and almost had to be reintubated, but has made another come back. Her vapotherm was increased to 5 liters and she had two blood transfusions and seems to be doing better. Her spells have really improved and she went a two whole days without spelling! She gets10 ml's every three hours and is two pounds six ounces.
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| Man, does she love her Binkie... |
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| Not to be confused with Blinky, Pinky, Inky and Clyde |
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| Ready, O.K. Brielle getting ready to be one of the fighting Toros.... |
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| That's alright, that's okay, you're gonna pump our gas someday...heck of a departure from "Interview with a Vampire"... |
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| I kind o think Mindy looks a little like Kristen Bell in this next picture (from "Fan Boys" and "Forgetting Sarah Marshall") |
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| Brielle: Daddy! Did you really compare Mommy to another girl, Oh no, it's going to be chilly tonight, turn up the blanket! |
We have a new appreciation
On Saturday Holding Tiny Hands had a lunch for parents of premature babies currently in the NICU and parents who endured a NICU stay in the past. We met another very sweet couple who had triplet girls almost a year ago. Combined their girls had five surgeries and all had brain bleeds. One of their girls had to have a stent placed and was in the NICU for five and a half months. We also met a mom whose baby will need a heart transplant before he is two years old. Seeing what others are/have gone through makes us appreciate our girls stable health. They still are tiny and need help breathing and sometimes forget to breathe but they are making progress and have dodged a lot of health complications. So thankful and praying for the health of the other babies.
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