We have recently changed providers and are going to the University of Iowa Pediatric Endocrinology department. And it is AMAZING. I mean the doctor herself called me with Brielle’s test results! Our visits there make for a long day but they are worth it. Here is the latest.
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Brielle 2018 Standing (Sitting) Tall!
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Brielle is growing.. taller that is. She is ACTUALLY on a “normal” growth chart! Let’s just say the doctor and I were so excited the whole room got high fives. Her latest tests estimate that she should reach 5 feet tall at a minimum!
October 1st 2018
- Height: 3’9.2” (7th percentile)
- Weight: 38 lb 5.8 oz (a generous 1st percentile)
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Brielle in 2018, catching up to her sister. They both started at 1 pound 8 ounces, so it's been a journey! |
April 23rd 2018
- Height: 3’7.9”
- Weight: 38 lb 2.2oz
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Brielle in 2017 before school started |
The growth hormones will continue until after puberty or would stop early if for some reason she fails to grow taller. Next on our list, find an insurance company that will help cover the cost of her medication. I am so over Zomactin. It is a great financial savings (still costly) for us but the mixing (I may have done it wrong once) and syringes and longer needles and larger pokes. We really don’t want to do that for another 8ish years.
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Brielle in 2018 holding her own in 8U soccer |
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Brielle in 2017, same "I got this" look |
Now her weight. Brielle is a picky eater who takes bites smaller than a mouse. She has recently said it hurts to swallow so she doesn’t always eat.
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When a food doesn't meet Brielle's (and her American Girl Doll's) approval |
So back to the GI doctor we went. She is on omeprazole for the next few months and MiraLAXfor constipation. (Yes I now have to ask her daily if her poop is like a snake or rabbit turds). We are hoping that combination can help her eat better and actually gain weight. If not, another scope may be in order. (Mind you she has already had 2). It is definitely a bit scary to see failure to thrive as a diagnosis she still carries. Brielle is a very active and bright kid so I have no doubts she will continue to flourish in life, we just want her to not be a skeleton.
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Still the brains and boss of the family (and she knows it!) |